National Hydrocephalus Foundation

A nonprofit organization founded in 1980 to familiarize the public with HYDROCEPHALUS, a buildup of cerebrospinal fluid inside the skull. The foundation also seeks to remove stigma from those with hydrocephalus, collect and disseminate information, counsel parents on specific problems encountered as a result of hydrocephalus in their children, work to obtain government funding for research, secure health insurance covering this disease, and form local chapters to help accomplish these goals. The foundation is supported by donations and membership fees and responds in particular to the disorder as a condition in itself, as opposed to hydrocephalus as a secondary condition of another disease.